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Cystic Fibrosis

Highlights

A collection of news and information related to Cystic Fibrosis published by this site and its partners.

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    Jun 12, 2013 |Story| Los Angeles Times
  1. Girl's lung transplant leaves thorny ethical questions

    The emails arrived by the dozens. Then the hundreds. Then the thousands.
    The emails arrived by the dozens. Then the hundreds. Then the thousands. Family and friends of Sarah Murnaghan had posted an online petition demanding that the 10-year-old, whose lungs were ravaged by cystic fibrosis, be given the same access as...

    Tags: Judges, Crime, Law and Justice, Values, Ethics, Demographics

  2. Jun 12, 2013 |Story| Los Angeles Times
  3. Family says prognosis is good for girl's adult lung transplant

    Hours into the delicate lung transplant surgery designed to save her life, the prognosis for 10-year-old Sarah Murnaghan was good, a family spokeswoman said Wednesday.
    Hours into the delicate lung transplant surgery designed to save her life, the prognosis for 10-year-old Sarah Murnaghan was good, a family spokeswoman said Wednesday. Speaking by cellphone from Children's Hospital of Philadelphia, spokeswoman Maureen...

    Tags: Judges, Crime, Law and Justice, Surgery, Lung Transplants, Justice System

  4. Jun 12, 2013 |Story| Los Angeles Times
  5. Pennsylvania girl who got on adult donor list gets lung transplant

    The critically ill 10-year-old Pennsylvania girl who was at the center of efforts to allow children younger than 12 to receive adult lungs was in surgery undergoing a transplant on Wednesday.
    The critically ill 10-year-old Pennsylvania girl who was at the center of efforts to allow children younger than 12 to receive adult lungs was in surgery undergoing a transplant on Wednesday. Sarah Murnaghan, who suffers from severe cystic fibrosis, was...

    Tags: Judges, Crime, Law and Justice, Philadelphia (Philadelphia, Pennsylvania), Lung Transplants, Justice System

  6. Jun 7, 2013 |Story| Los Angeles Times
  7. Philadelphia rulings on dying children spur debate on transplants

    A second dying child has been given a chance to get a transplant of adult lungs, the latest step in a debate over a policy that has raised medical and legal questions.
    A second dying child has been given a chance to get a transplant of adult lungs, the latest step in a debate over a policy that has raised medical and legal questions. Javier Acosta, 11, has been placed on the official list to receive an adult lung...

    Tags: Judges, Tropical Storms, Crime, Law and Justice, Human Interest, Lung Transplants

  8. Jun 6, 2013 |Story| Los Angeles Times
  9. Pennsylvania girl given opportunity for adult lung transplant

    A 10-year-old Pennsylvania girl has been given a chance at a transplant that could save her life after a judge ordered that the desperately ill child be added to the list of those hoping to receive an adult lung.
    A 10-year-old Pennsylvania girl has been given a chance at a transplant that could save her life after a judge ordered that the desperately ill child be added to the list of those hoping to receive an adult lung. The case, involving Sarah Murnaghan,...

    Tags: Lotteries, Tropical Storms, Lifestyle and Leisure, Lung Transplants, Kathleen Sebelius

  10. Jun 6, 2013 |Story| Los Angeles Times
  11. The rules of organ transplant vs. a dying little girl

    Was U.S. Health and Human Services Secretary Kathleen Sebelius being rigid and cruel when she refused an exception to the rules so a 10-year-old girl could receive a lung transplant from an adult? The girl, Sarah Murnaghan, was placed on the adult transplant list &mdash; she also remains a priority patient on the pediatric transplant list &mdash; after a judge <a href="http://www.sacbee.com/2013/06/05/5474095/parents-file-lawsuit-in-pa-lung.html">ordered the change to be made</a>.
    Was U.S. Health and Human Services Secretary Kathleen Sebelius being rigid and cruel when she refused an exception to the rules so a 10-year-old girl could receive a lung transplant from an adult? The girl, Sarah Murnaghan, was placed on the adult...

    Tags: Judges, Crime, Law and Justice, Lung Transplants, Kathleen Sebelius, Justice System

  12. Feb 7, 2013 |Story| Los Angeles Times
  13. 'American Idol' recap: Hollywood Week -- for boys only

    It's Hollywood Week on "American Idol." That usually means we're in for some drama and tension, especially during the dreaded group round &ndash; scenes of stressed-out contestants strolling around looking for kindred spirits, flashes of anger, exhaustion, frustration, desperation, tears.
    It's Hollywood Week on "American Idol." That usually means we're in for some drama and tension, especially during the dreaded group round – scenes of stressed-out contestants strolling around looking for kindred spirits, flashes of anger,...

    Tags: Peter Garrett, Steven Tyler, Chris Watson, Nicki Minaj, Mariah Carey

  14. Feb 1, 2013 |Story| Los Angeles Times
  15. 'American Idol' recap: Steven Tyler in drag? OK!

    Apart from Steven Tyler, dressed in drag and calling himself "Pepper," stopping by to spice things up -- he got in a bleeped-out word, a head-scratching farm-animal reference and a moon in record time &ndash; things were relatively tame at "American Idol's" Oklahoma City auditions. The judges seem to have settled into their groove, with an apparent absence of friction between Mariah Carey and Nicki Minaj. Keith "Mr. Easygoing" Urban, though prone to catching the giggles, kept things moving along.
    Apart from Steven Tyler, dressed in drag and calling himself "Pepper," stopping by to spice things up -- he got in a bleeped-out word, a head-scratching farm-animal reference and a moon in record time – things were relatively tame at "American Idol'...

    Tags: Toni Braxton, Steven Tyler, Nicki Minaj, Mariah Carey, Stevie Wonder

  16. Aug 18, 2012 |Column| Los Angeles Times
  17. Stair climbs: Getting a leg up

    I call Stan Schwartz a "stair-ologist." But he prefers a warmer, cuddlier term.
    I call Stan Schwartz a "stair-ologist." But he prefers a warmer, cuddlier term. "I'm a nerd," says the 52-year-old system analyst for the earthquake computer at Caltech. "I studied the staircase in this building like a bug under a microscope. I took...

    Tags: Road Running, Empire State Building, YMCA, Cross Country Skiing, Demographics

  18. Jun 11, 2012 | Los Angeles Times
  19. Former British prime minister contradicts Murdoch's statement

    World Now
    Gordon Brown denied Murdoch's allegations of "war" threats; Ex- premier lambasts Murdoch's Sun...
  20. Jan 9, 2012 |Story| Los Angeles Times
  21. My Turn: Ready to celebrate a new hope for cystic fibrosis

    For years, a picture of Dr. Francis Collins, torn from the pages of a 1989 issue of Newsweek, held fast to our refrigerator door. Two red magnets placed him in the middle of Little League schedules, school rosters and Citizen of the Month certificates.
    For years, a picture of Dr. Francis Collins, torn from the pages of a 1989 issue of Newsweek, held fast to our refrigerator door. Two red magnets placed him in the middle of Little League schedules, school rosters and Citizen of the Month certificates....

    Tags: Diseases and Illnesses, Scientific Exploration

  22. Nov 2, 2011 |Story| Los Angeles Times
  23. Cystic fibrosis drug ivacaftor offers patients new hope

    All her life, Lindsay Shipp knew that she was dying. As a baby, she would cry after eating, and salt collected on her forehead. The diagnosis was cystic fibrosis, an incurable genetic disease that, at the time, meant a life expectancy of 18 years.
    All her life, Lindsay Shipp knew that she was dying. As a baby, she would cry after eating, and salt collected on her forehead. The diagnosis was cystic fibrosis, an incurable genetic disease that, at the time, meant a life expectancy of 18 years. The...

    Tags: University of Iowa, Diseases and Illnesses, Salt, Vertex Pharmaceuticals Incorporated, Pancreas

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