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Family struggles to find answers for boy with rare stiff skin syndrome

Family struggles to find answers for boy with rare stiff skin syndrome

Compared with the developmental and emotional problems Jaiden suffered from the time he was born, the odd patch of skin that appeared on his right thigh when he was 7 seemed minor.

He noticed it first. It was about the size of a postage stamp and looked no different than the surrounding skin. But it felt as hard as pavement.

Natalie and Tim Rogers — Jaiden's legal guardians — weren't particularly worried, and neither was his pediatrician. But a specialist ordered a biopsy and told Natalie to sit down before giving her the news over the phone.

She imagined cancer. The doctor gave her a different diagnosis: stiff skin syndrome.

It sounded so innocuous,...

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