Muscular Dystrophy

Are pharmaceutical companies gouging taxpayers? Lawmakers need to find out

Are pharmaceutical companies gouging taxpayers? Lawmakers need to find out

Having a child who suffers from Duchenne muscular dystrophy, a rare and fatal muscle-wasting disease that affects about 12,000 boys in the United States, is tragic enough. But watching drugmaker Marathon Pharmaceuticals seek a 70-fold increase in the price of a drug that can extend those patients’ lives — that’s beyond the pale. In fact, it’s outrageous enough that it should persuade California lawmakers finally to shine a light on how drug companies set their prices.

Illinois-based Marathon won the Food and Drug Administration’s approval this month...

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