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Pat Quinn, co-founder of ALS Ice Bucket Challenge, dies at 37

Pat Quinn, a co-founder of the Ice Bucket Challenge that became popular around the world, has died at age 37, the ALS Assn. says.

Pat Quinn, a co-founder of the social media campaign ALS Ice Bucket Challenge, which has raised more than $200 million worldwide for Lou Gehrig’s disease research, died Sunday, according to the ALS Assn. He was 37.

Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013, a month after his 30th birthday, the organization said in a statement announcing his death.

“Pat fought ALS with positivity and bravery and inspired all around him,” the association said. “Those of us who knew him are devastated but grateful for all he did to advance the fight against ALS. ... Our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world.”

In 2014, Quinn saw an ice bucket challenge on the social media feed of professional golfer Chris Kennedy, who first dared his wife’s cousin Jeanette Senerchia to take a bucket of ice water, dump it over her head, post a video on social media and ask others to do the same or to make a donation to charity. Senerchia’s husband had ALS.

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Quinn and ALS challenge co-founder Pete Frates, along with their teams of supporters, helped popularize the stunt. The ALS Assn. said Quinn “knew it was the key to raising ALS awareness,” calling it “the greatest social media campaign in history.”

Frates, a former Boston College baseball player, died in December 2019 at the age of 34.

The ALS Association is crediting money raised through the Ice Bucket Challenge for the discovery of a gene they say is among the most common that contribute to the progressive disease.

When the two men picked up on the challenge, the phenomenon exploded, the organization said. Thousands of people participated in the viral trend, including celebrities, sports stars, business magnates and politicians — even Donald Trump before his election and cartoon character Homer Simpson. Online videos were viewed millions of times.

“It dramatically accelerated the fight against ALS, leading to new research discoveries, expanded care for people living with ALS, and significant investment from the government in ALS research,” the organization’s statement said.

Lou Gehrig’s disease, named after the New York Yankees great who suffered from it, is a progressive neurodegenerative disease that leads to paralysis from the death of motor neurons in the spinal cord and brain. There is no known cure.

The organization added that Quinn continued to raise awareness and funds after popularizing the challenge. In 2015, the association honored him, among others, as “ALS Heroes” — an award given to people living with the disease who have had a significant positive impact on the fight against it.

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On the fifth anniversary of the challenge, Quinn, who was from Yonkers, N.Y., addressed a crowd in Boston.

“Nobody knew the ice bucket challenge would become a worldwide phenomenon, but we united as one because that is what it takes to change a disease like ALS,” he said. “There are warriors all over the world unwilling to accept it as a death sentence. … We will never stop fighting together. I will not leave this Earth until I know the next person diagnosed with ALS has a real plan to live with this disease, not just die from it.”


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